20th Annual FORE Duchenne

Date/Time

8:00 am

Location

Westfields Golf Club

13940 Balmoral Greens Avenue

Clifton,

Virginia

20124

Please join us for our annual FORE Duchenne golf tournament at beautiful Westfields Golf Club in Clifton, VA. This is a wonderful opportunity to raise funds that will help support cutting-edge research into treatments and ultimately a cure for Duchenne Muscular Dystrophy (DMD), the number one genetic child killer in the world. DMD affects one in every 3,000 boys born among all ethnic groups.

This year’s event is slated to be a spectacular outing with great golf, prizes, food, fun and competition. Come play a round of golf at the only Fred Couples-designed course in the region, while helping advance medical treatments for boys suffering from DMD. Westfields Golf Club is a Certified Audubon Cooperative Sanctuary, providing a beautiful and private setting for a truly unique round of golf.

The course is conveniently located in Northern Virginia, 20 minutes from Dulles International Airport, and 45 minutes from downtown Washington, DC.

Link to the full invite: 20^th Annual FORE Duchenne Invite

FORE Duchenne provides a number of opportunities for sponsorship

SPONSORSHIP OPPORTUNITIES

HOLE-IN-ONE | $15,000 – Includes Two Foursomes

EAGLE | $10,000 – Includes One Foursome

BIRDIE | $5,000 – Includes One Twosome

PAR | $2,500

Single Golfer| $1,500

To become a sponsor online by credit card – Click Here

Leadership

Board of Directors

Joel Wood, President | Scott Sinder, Secretary | James Wood, Treasurer | Dan Carson, Director | Dave Heil, Director | Brad Todd, Director

Advisors

Dr. Eric Hoffman Dana Wood Monica Heil Tina Carson

Staff

Michelle Payne, Executive Director

Financial & Tax Information

FED strives to be transparent in our work. Here are links to our most recent IRS form 990 and audited financial statements. If you have questions, please do not hesitate to contact us.

What is Duchenne Muscular Dystrophy?

The words “incurable” and “untreatable” have been closely associated with Duchenne. It is an X-chromosome disease that afflicts boys, and it will never be eliminated through genetic screening because the dystrophin gene is the largest gene in body – times ten – and thus much more prone to have flaws that are not inherited. The trajectory of this disorder is insidious. Duchenne boys typically are not diagnosed until they are four years old or older. They tend to get better in the so-called “honeymoon” stage, which usually lasts until the early teenage years. But their muscles are deteriorating and cannot regenerate. Dystrophin is part of the chemical glue that holds muscle cell walls together, and those walls eventually collapse and are filled with collagen that causes fibrosis. First the legs give out, slowly, then, the arms and upper body. The disease moves from skeletal muscle to smooth muscle tissue. Lungs and hearts deteriorate. Corticosteroid treatment forestalls the muscle deterioration, but steroids have terrible side effects such as making bones brittle. Unlike many single-gene-defect disorders that only strike at certain ethnicities or demographics, Duchenne is a disease that does not discriminate – it is the world’s leading lethal inherited disease, afflicting one in 3,500 boys. The incidence rate among all races is identical. As the world becomes more conscious of issues of racial disparity, it is clear that standards of care are resulting in disparate quality of life and certainly life expectancy among sufferers of different races. You get the picture. Duchenne Muscular Dystrophy is excruciating, ruthless, sadistic, and painful. More than anything, it is cruel. The FED’s mission is to identify, leverage, and bring to market treatments that will benefit ALL sufferers of this disease.