20th Annual Dining Away Duchenne

Date/Time

7:00 pm - 8:30 pm

This Year’s Event Video!

Join us virtually!

Dining Away Duchenne is a celebrity chef dine-around event benefiting the Foundation to Eradicate Duchenne, hosted by Joel and Dana Wood. This year, the event is a virtual engagement featuring appearances by longtime supporting Members of Congress, cooking demonstrations by some of our renowned celebrity chefs, and special messages from some of the Foundation’s champions. Proceeds will fund cutting-edge research into treatments for Duchenne muscular dystrophy.

Link to the full invite: 20th Annual Dining Duchenne Invite

Dining Away Duchenne provides a number of opportunities for sponsorship:

Connoisseur – $25,000

Company logo prominently displayed on virtual platform and video background as well as in program materials in the Dining Away Duchenne gift boxes
Verbal recognition during virtual program
Opportunity to include logo items to guests in the Dining Away Duchenne gift boxes
(15) virtual participants and 15 Dining Away Duchenne gift boxes

Aficionado – $10,000

Company logo displayed on virtual platform and video background as well as in program materials in the Dining Away Duchenne gift boxes
Verbal recognition during virtual program
Opportunity to include logo items to guests in the Dining Away Duchenne gift boxes
(10) virtual participants and 10 Dining Away Duchenne gift boxes

Gourmet – $5,000

Company logo displayed on virtual platform and video background as well as in program materials in the Dining Away Duchenne gift boxes
Opportunity to include logo items to guests in the Dining Away Duchenne gift boxes
(5) virtual participants and 5 Dining Away Duchenne gift boxes

Friends – $1,000

Company name displayed on program materials in the Dining Away Duchenne gift boxes
(2) virtual participants and 2 Dining Away Duchenne gift boxes

Individual – $250

(1) virtual participant and 1 Dining Away Duchenne gift box

To become a sponsor online by credit card – Click Here

For more information, please contact Madison at madison@duchennemd.org or (703) 683-7500.

Leadership

Board of Directors

Joel Wood, President | Scott Sinder, Secretary | James Wood, Treasurer | Dan Carson, Director | Dave Heil, Director | Brad Todd, Director

Advisors

Dr. Eric Hoffman Dana Wood Monica Heil Tina Carson

Staff

Michelle Payne, Executive Director

Financial & Tax Information

FED strives to be transparent in our work. Here are links to our most recent IRS form 990 and audited financial statements. If you have questions, please do not hesitate to contact us.

What is Duchenne Muscular Dystrophy?

The words “incurable” and “untreatable” have been closely associated with Duchenne. It is an X-chromosome disease that afflicts boys, and it will never be eliminated through genetic screening because the dystrophin gene is the largest gene in body – times ten – and thus much more prone to have flaws that are not inherited. The trajectory of this disorder is insidious. Duchenne boys typically are not diagnosed until they are four years old or older. They tend to get better in the so-called “honeymoon” stage, which usually lasts until the early teenage years. But their muscles are deteriorating and cannot regenerate. Dystrophin is part of the chemical glue that holds muscle cell walls together, and those walls eventually collapse and are filled with collagen that causes fibrosis. First the legs give out, slowly, then, the arms and upper body. The disease moves from skeletal muscle to smooth muscle tissue. Lungs and hearts deteriorate. Corticosteroid treatment forestalls the muscle deterioration, but steroids have terrible side effects such as making bones brittle. Unlike many single-gene-defect disorders that only strike at certain ethnicities or demographics, Duchenne is a disease that does not discriminate – it is the world’s leading lethal inherited disease, afflicting one in 3,500 boys. The incidence rate among all races is identical. As the world becomes more conscious of issues of racial disparity, it is clear that standards of care are resulting in disparate quality of life and certainly life expectancy among sufferers of different races. You get the picture. Duchenne Muscular Dystrophy is excruciating, ruthless, sadistic, and painful. More than anything, it is cruel. The FED’s mission is to identify, leverage, and bring to market treatments that will benefit ALL sufferers of this disease.