12th Annual Jeffrey Steele Concert – SOLD OUT!

Date/Time

6:30 pm CDT/7:30 pm EDT
Link to Stream here: https://youtu.be/eYZeAWthff0

Location

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Event | Link to the full invite: 12th Annual Jeffrey Steele Concert

This unique concert is in its 12^th year supporting the Foundation to Eradicate Duchenne. A sold-out crowd every year is treated to one of the most amazing live performances you will ever witness by singer/songwriter Jeffrey Steele. Each year, he is joined by other Nashville performers. Truly a night to remember.

Ticket Information – SOLD OUT!

~~Reserved Tables – $6,000~~
~~Includes seating for 6, limo service, and a photo with Jeffrey~~
~~Non-Reserved Seats – $300 each~~

If you are interested in learning more about this event, please email madison@duchennemd.org.

Leadership

Advisors Dr. Eric Hoffman Dana Wood Monica Heil Tina Carson

Staff Michelle Payne, Executive Director

Financial & Tax Information

FED strives to be transparent in our work. Here are links to our most recent IRS form 990 and audited financial statements. If you have questions, please do not hesitate to contact us.

What is Duchenne Muscular Dystrophy?

The words “incurable” and “untreatable” have been closely associated with Duchenne. It is an X-chromosome disease that afflicts boys, and it will never be eliminated through genetic screening because the dystrophin gene is the largest gene in body – times ten – and thus much more prone to have flaws that are not inherited. The trajectory of this disorder is insidious. Duchenne boys typically are not diagnosed until they are four years old or older. They tend to get better in the so-called “honeymoon” stage, which usually lasts until the early teenage years. But their muscles are deteriorating and cannot regenerate. Dystrophin is part of the chemical glue that holds muscle cell walls together, and those walls eventually collapse and are filled with collagen that causes fibrosis. First the legs give out, slowly, then, the arms and upper body. The disease moves from skeletal muscle to smooth muscle tissue. Lungs and hearts deteriorate. Corticosteroid treatment forestalls the muscle deterioration, but steroids have terrible side effects such as making bones brittle. Unlike many single-gene-defect disorders that only strike at certain ethnicities or demographics, Duchenne is a disease that does not discriminate – it is the world’s leading lethal inherited disease, afflicting one in 3,500 boys. The incidence rate among all races is identical. As the world becomes more conscious of issues of racial disparity, it is clear that standards of care are resulting in disparate quality of life and certainly life expectancy among sufferers of different races. You get the picture. Duchenne Muscular Dystrophy is excruciating, ruthless, sadistic, and painful. More than anything, it is cruel. The FED’s mission is to identify, leverage, and bring to market treatments that will benefit ALL sufferers of this disease.